Howdy aliens.LOL.Okayy,today I'm going to talk about this documentary I saw that day in Discovery Channel.It was a about a boy named Payton Thornton.
This adorable 5 year old is suffering from this rare disease called recessive dystrophic epidermolysis bullosa, the most severe and aggressive form of epidermolysis bullosa — "EB" for short.When a baby was born,normally he or she would be carried in a blanket.But not Payton.When Payton came back from the ICU, he was swaddled not in a soft baby blanket, but in gauze bandages and medicinal lotion.
Payton came into the world screaming — not the normal cries of a newborn, but screams of pain. The skin on Payton's left foot stopped just above the ankle, exposing muscle and bone.Imagine that.No skin.Nothing to protect you in the sun or the rain.There is no cure, and most kids born with Payton's form of EB don't live to see their 20th birthday, often dying from a particularly aggressive form of skin cancer.
That is Payton at your left.That is his brother.Payton have two healthy siblings.
What made me in tears that day.(I SWEAR TO GOD I HAVE NEVER CRIED WATCHING TV LIKE THAT BEFORE IN MY LIFE) is that this boy have to wear 4 layers of bandage around his body twice a day.Imagine someone pulling and pressuring you open wound with bandages.AHHH.I just cant.He cant run,swim or do anything unlike his elder brother.When his mom was putting the bandages on him,he was like "NO,MUMMY.IT HURTS.IT HURTS SO BADLY.NO MORE MUMMY".I made the entire handkerchief soaked wet with my tears.The worst part is when his mum wanted to bring him for a bath.He was like screaming in the bath tub because it hurts SOOO MUCH when the water exposed to his open skin.
I really wanna meet him.Like so badly.And give him a hug.If I ever go to USA,I would really go and find him.These stories of people inspires and actually encourage me to become a doctor.Help someone to end their sorrow.Make a pathway for them.
God should be with him like all the time.Guide him to happiness in life.=)
so sad. :( hopefully he'll get better. anyways, the biological (cell) doctors should invent something so that he could have the outer layer of skin. :(
i too watched that program..ohh it is so painful to little payton..may god give him a lots of power to cope up wid dis eb..and i pray dat he will get well soon..hats off to payton's parents...so much endurance they has got ..he had his bone marrow transplant after his younger brother donate it.... and i guess he wud be felling better...lots of prays to payton...
so sad. :(
ReplyDeletehopefully he'll get better.
anyways, the biological (cell) doctors should invent something so that he could have the outer layer of skin. :(
i too watched that program..ohh it is so painful to little payton..may god give him a lots of power to cope up wid dis eb..and i pray dat he will get well soon..hats off to payton's parents...so much endurance they has got ..he had his bone marrow transplant after his younger brother donate it.... and i guess he wud be felling better...lots of prays to payton...
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